Tuesday, February 24, 2009

Antibiotic-resistant E-Coli?!

I am SO happy to FINALLY be home! About 12 days ago I started feeling really sick: Severe body aches, fever, yuckiness! The 2nd day it became worse so I decided to go to the Instacare--HUGE mistake! I went in with a fever of 102.7 and body aches so bad I could barely move, but the doctor just tested me for the flu and gave me Ibuprofen for the pain...not even Tylenol for the fever! Sooo...throughout that day it worsened, and I decided I better go to my mom's so she could care for Annabelle, and so I could lie in bed. But at about 7pm, I started feeling terrible and I was FREEZING! My temperature was 106! My dad took me to the ER and they finally got my fever under control, finally gave me the good medication for the pain, did some chest x-rays, and ran a few other tests. The Dr. diagnosed me with Reactive Airway Disease and the flu (by this time my lungs were displaying symptoms).
The following day I didn't feel any better, and I got a call from my ER doctor saying one of my tests had come back showing some "growth." We had to wait another 24 hrs for secondary results to come back, and when those finally came back, I got another call saying I had tested positive for an Antibiotic-resistant strain of E-Coli, and I needed to get back to the hospital for treatment (which can only be done via IV). By the time I got back to the ER, my heart rate was 35 beats per minute, my lungs were filled with asthma and fluid, and the Center for Infectious Diseases was battling back and forth with my ER doctors about treatment. Once they found the ONE medication that the E-Coli was sensitive to, they began the IV, but my heart rate kept dropping and I was having difficulty breathing. My Cardiologist (literally, a heaven-sent man) came in, instantly admitted me, and started ordering more tests: EKG, Echo-cardiogram, CT scan, x-rays, and breathing treatments. I felt so relieved to FINALLY be taken care of! The EKG was the first test result we received, and it showed wave abnormalities; the 2nd result was from the Echo-cardiogram and it showed a fluid sac surrounding my heart, and the 3rd piece of bad news was that in the next 12 hrs they couldn't get my heart rate above the 30's. When they had me walk around for about 7 minutes in the halls, my heart rate ended up crashing, instead of rising. This all brought about the WORST conversation I've ever had with a doctor, in which he advised me that the E-Coli had launched a systemic attack on my body: Heart, lungs, stomach. The virus was affecting the vein that controls the slowing of the heart, and causing it to override the vein which speeds it up; my lungs were not responsive to the breathing treatments, and if it didn't imrove within 24 hrs, we were going to need to discuss a "permenent solution to a temporary problem"--a pacemaker! At 30! Soooo of course...BREAKDOWN AND TEARS! He advised breathing treatments, IV steroids, and another dose of the E-coli IV for that night, and told me I'd do a treadmill stress test the next morning to see if we could get that other vein to kick into gear. The next morning I knew I had to dig deep and try and get through this test, even though I hadn't eaten in about 4 days, I was dizzy, and wayyyy weak. The Cardiologist wanted to get me to 85% of my max, but at 76% I had to stop because my knees were going to collapse from underneath me and I was seeing stars. BUT...somehow it ended up being enough, and the rate started to come up!
However when I got back to my room, my Pulmonologist decided we needed to double up the medications in my breathing treatments because they weren't doing the job. During the treatment I had a severe reaction, which caused my entire body to cramp up and spasm. My hands cramped into contorted positions, and no one could move them, my eyes felt like they were blinking a million miles per hour, and my entire face was twitching. It took 25 minutes to come out of it, and it was one of the WORST experiences I've ever felt. The Dr. felt it made a difference in my lungs though, and they ordered the same treatment for 3 hrs. later! The 2nd time I had 3 nurses in there with me to make sure everything went ok, but the same thing happened, and I couldn't move. I just remember how awful it felt. I just lay there crying and twitching, not having ANY control over any part of my body. My hands looked like something from a horror movie--by far one of the worst experiences of being there! After that, they changed up the formula of meds again, and I started getting some results.
The next 24 hrs my heart rate came back up into the 40's, and the IV steroids for my lungs started working as well. But I was soooooo sick! I couldn't even lift my head off the pillow I was so sick. The doctors said I could have only parents visit at this point, and I basically slept the entire day. The next day I felt less nauseous, but still out of it. My blood pressure was way low each time I'd try and sit up, and I ended up passing out on the floor of my hospital room when I attempted to stand up on my own. Needless to say, they made me stay another night, and gave me fluids through the IV throughout the entire night. BUT ALAS...the following morning I felt much better! My blood pressure was way low, and the Cardiologist suggested one more night, but I couldn't! The man in the next room was moaning; I hadn't had fresh air in forever, and I wanted to leave. So...6 days after getting admitted, and 9 days after getting sick, I got to go home!
I feel so blessed to be back home, and I am amazingly blessed to have such a WONDERFUL family! My mom slept at the hospital the entire time I was there, and each time my heart rate alarm would sound, she'd make sure I woke up, sat up and moved around. She was the only one who could get answers from the doctors; she helped me each time I needed to stand up; she made multiple trips to the cafeteria for me when I finally felt I could eat something; she tried to massage my hand when it was contorted; she brought me hygiene items from her house and Nordstrom's, so I didn't have to use crappy hospital stuff, and she made sure I was as comfortable as possible. She and I will always share this experience in a unique way because we were really the only two who knew how bad it got, how scary it was, how awful I felt, and what a miracle it was that my heart and lungs began responding. She went through all the emotions and conversations with me, and I couldn't have done it without her! She's the BEST! I am also so thankful for Brittany and Nikki, who took Annabelle for me, and loved and cared for her like she was their own. They are the GREATEST, and it meant more than anything to me to know that she was taken care of, and I didn't have to worry one bit. I am grateful for my mother-in-law who came up to see me each day after work, drove out and checked on my house, and brought me magazines. I am so grateful for everyone in my family and in Josh's family who fasted and prayed for me, and I KNOW prayers are answered if we just have the faith! God is always there for us, aware of us and our needs. Sometimes He just needs us to believe that we can get better!

13 comments:

Kristy said...

Robyn, I am so so so glad to hear you are doing better. What a terrifying experience.

On the upside, I am excited for you that Josh is coming home!

Doney Days said...

I'm so glad you blogged the details. That is so horrible and terrifying. What a blessing to have so many loved around you to care for you and Annabelle. I'm so happy you're doing better and that your Josh will be home soon!

jacksonx03 said...

Robyn!!! Oh my gosh, I wish I would have known, I am so sorry about all of this. I know not having your spouse to rely on probably made it worse, your mom sounds like a champ though! Bless your heart, I hope you are well. What are the long-term effects of this or are you done with it?

Britny Hill said...

HOLY CRAP ROBYN!!! I am so glad to hear you're okay! That is absolutely terrible you had to go through that! I hope things keep getting better!

Erin said...

Oh Robyn! I'm so sorry to hear about all you went though! I'm so relieved that you are better and out of the hospital! What an experience that must have been. Your mom sounds like an angel and I'm so happy that she was there right by your side! PLEASE let me know if you need anything ever I mean it! Take care you!!

Mandi said...

What a nightmare. That is so scary. I'm so glad you are feeling better.

jenny said...

How scary I'm so glad your all right.

Al said...

When Josh gets home you seriously need a nice vacation and much needed pampering! And honestly, you were on my mind all last week (not in any wierd stalker way I swear). I wish you would have been at Vic's hospital so he could check on you and make sure you being well taken care of. I am happy to hear you doing better. I hope you will be back to 100% soon! Hope to see you guys in a few weeks!

Sarah said...

Oh, Robyn. I've been wondering how you're doing with Josh coming home so soon. And I checked in on you today to find this! So scary. I can't even imagine how terrifying that all must have been. SO glad you are feeling better now. Truly a miracle.

crista said...

I am so glad that you are well, and ok! How scary of an experience that is and so glad that you have family so close!

Tashina said...

Oh my gosh, girl! I was freaking out the entire time I was reading this, even though knowing that you ended up being ok... I am glad to know that you are feeling better, and so happy to know that you get to pick up Josh tomorrow morning! You've made it so far! Congratulations!!

Miranda said...

What a terrible thing to have to go through. You are an amazing woman. I am so glad that you are doing better. I know that I live a few hours away, but if there is anything I can ever do for you, please let me know!

Unknown said...

Holy crap Robin! That is totally scary. I'm glad you are obviously better. What a traumatic thing! AND... how great to have your hubby back! Hope you are doing well!